🏷️ About: If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru.
We Investigate the app owner's website (Rareguru.com), verify their legitimacy, and uncover hidden scams and complaints.
This is such an inspirational app. I love the idea of bringing together isolated individuals and groups in the rare disease community to share and learn in a positive environment. This is what the internet was made for! After reading the founder’s story and some of the other shared stories on the blog, I’m really excited to see how RareGuru grows. This has potential to be life changing for those of us who care for others or who suffer from a rare disease ourselves.
As someone with a rare disease that affected about 1 in 100,000 to 1 million people I’ve been looking for a platform to connect with others with the same thing and a place to track when my symptoms aren’t regular! If I could rate this 10 stars I would. Everyone needs to know about RareGuru!
Such a great app to connect with others in the rare disease community. Finally a place to learn and share resources, experience, treatments, and our lives with others that share in our rare disease diagnosis. Amazing. So grateful to have this available.
RareGuru is rlly cool and I was so relieved 2 find other teens like me! IDK that there was an app like RG!!!! It’s so cool and is very sleek and easy 2 use. It has helped me to DM other people going through the same stuff as me. I don’t feel so alone ⭐️ ⭐️ ⭐️ ⭐️ ⭐️
As a rare disease teen patient it is so hard to connect with people though social media. this app solved that problem for me. I was able to connect with other people which was so amazing for me as a teen patient. Love RareGuru 10/10
this app is a comprehensive and easy to use resource and I’m thankful it was created. Whether I utilize it for myself or a loved one, RareGuru will connect people and help bring clarity and hope to their situation.
Very easy to use and very exciting to be able to talk to people with experiences similar to ours. This is a great tool for our family. We are so happy that we found this app.
this app is great. It’s an awesome way to connect with patients and caregivers of rare diseases that may know more about a rare disease than a Google search rabbit hole can provide. Thankful to have RareGuru in our community!
What an amazing app! Onboarding as a “caregiver” instead of as a “patient” means I can finally connect with other caregivers who are facing a similar journey. Great resource for my entire family! Awesome.
Everything you need to know and connect is right here! It’s bringing me closer to this who are just like me while giving me so much information.
As a healthcare professional I can’t say how much RareGuru was NEEDED!!! So helpful on so many levels even if you don’t have a rare diagnosis. Thank you for bringing this into existence!
Finally an app that is extremely easy to use and allows you to choose between caregiver or patient. Love the community aspect of Rare Guru!
I think this is an amazing outlet to connect people who otherwise may not find the support network they need!
RareGuru has solved so many problems for me. From connecting me to symptoms to helping me find a community, this app has been a lifesaver.
It is important that technology like this be harnessed to help inform and treat those with this illness.
I've spent years with minor gripe that seemed just a bit abnormal for my age but I also wasn't the nicest to my body when younger so I dismissed them.
I came to find Rare Guru through an article I read, and really thought nothing of it at first besides it being a neat idea and my own experience in tech and frustration about my medical issues.
I've had a suspicion that I had something weird aka rare that was not being diagnosed. Well thanks to the article which feature RareGuru and its founders, I asked for a lab test that probably nobody would ever have ordered because I don't fit the clinical profile. I mean, almost not at all.
Turn out it's abnormal and highly suggestive of hypophosphatasia.
There are 10s of thousands of people using RareGuru, and the founders took time to talk to me through RareGuru and even a video conference and provide me with lots of info since it is something they are familiar with.
My mind is truly blown. I finally have some answers for decades long questions that I probably would not have ever found was it not for that article and the story of Heather, her daughter and RareGuru they created.
I know this review isn't really about the features of RareGuru , but since I work in the internet tech space, let me just say that it's not the features and functionality or lack of bugs that make a great app.
It's whether it is effective for its intended purpose. I am one fretful individual who has proved that truly is the core of RareGuru. It has been proved effective and I get to join an exclusive club of about 500 out of 330,000,000 people with this diagnosis. Let that % sink in. I'm off to buy a lottery ticket now.
Thank you, Heather, Bennett and family!
RareGuru: Rare Diseases is very safe to use.
JustUseApp Safety Score for RareGuru is 66.8/100.
This assessment is based on our NLP analysis of 47 user reviews.
Combined with the app store average rating of 4.8/5.
RareGuru: Rare Diseases looks authentic and legitimate.
Our NLP models processed user feedback to estimate legitimacy. JustUseApp Legitimacy Score for RareGuru is 151.3/100 .
This conclusion is based on analysis of 47 user reviews.
RareGuru collected the following data from you:
- RareGuru’s disease database contains up to 7,000 rare diseases and chronic conditions and more than 21,000 symptoms.
RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms.
Track your symptoms, share your diagnosis, learn more about your disease and help others through their healing process.
Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru.
- The disease database is regularly updated based on data from the United States Genetic and Rare Disease Information Center (GARD).
