🏷️ About: This Registry has been created specifically for individuals who have a diagnosis of Duchenne or Becker muscular dystrophy, and for carriers of Duchenne or Becker. Parents and guardians may register on behalf of children and teens with Duchenne/Becker.
We Investigate the app owner's website (Threadresearch.com), verify their legitimacy, and uncover hidden scams and complaints.
Clinicians, researchers and pharmaceutical companies who access the Registry data can better understand Duchenne and Becker.
The Duchenne Registry is deeply committed to protecting your privacy and identity, and will use every available measure to ensure the security of your personal information.
In addition, the Registry also offers you access to information regarding clinical trials and research studies that may be a good fit for you or your child.
This Registry has been created specifically for individuals who have a diagnosis of Duchenne or Becker muscular dystrophy, and for carriers of Duchenne or Becker.
In order to help advance research for Duchenne, we will share your de-identified data with eligible researchers around the world.
